Through the month of March, those with inherited bleeding disorders, their families, friends and supporters are asked to help spread awareness of these disorders by sharing Hemophilia Awareness Month messages on their social media profiles. The Hemophilia Awareness Month graphics can be downloaded here: http://hfnv.org/awareness/
Thousands of Nevadans and their families are affected by inherited bleeding disorders for which there is no cure, just life-long reliance on costly medicine to prevent devastating bleeds.
In 1986, President Ronald Reagan designated March as Hemophilia Awareness Month to help bring greater awareness and attention to all those with inherited bleeding disorders.
The Nevada Chapter of the National Hemophilia Foundation (NHF Nevada) founded in Las Vegas in 1990, is dedicated to improving the quality of care and quality of life for all those with inherited bleeding disorders, including Hemophilia and von Willebrand Disease.
Hemophilia is a genetic bleeding disorder that prevents the blood from clotting normally. The primary symptom involves uncontrolled, often spontaneous bleeding in areas of the body. Internal bleeding results in pain, swelling and if left untreated, can cause permanent damage. Approximately 20,000 people have hemophilia in the United States. Hemophilia occurs most often in males.
Von Willebrand Disease (vWD) is a genetic disorder in which the blood does not clot properly. It is caused by a deficient or defective blood protein known as von Willebrand factor. Von Willebrand Disease is the most common inherited bleeding disorder, affecting about 1 percent of the population in the United States. It occurs equally in men and women. About one in 50 people have vWD and don’t know it.