Several hundreds kids and adults (and some dogs) gathered at Floyd Lamb Park at Tule Springs on Saturday, September 21, 2013 to take part in the Hemophilia Walk and 5K event. The 5th annual walk is the major fundraiser for the Nevada Chapter of the National Hemophilia Foundation which serves hundreds of families with inherited bleeding disorders across Nevada.
The chapter had a walk fundraising goal of $45,000, but as of walk day expected to surpass $50,000 in donations when the tally was complete. Funds from the walk will be used for a variety of programs including Camp Independent Firefly. Every summer the chapter sends several children with inherited bleeding disorders, and their siblings, to a special medically supervised camp for free. The “students” learn how to manage their disorder from on-site medical professionals and also have the chance to just be a kid within the safe confines of the camp. In addition, the chapter works to educate, advocate and support all those in the inherited bleeding disorder community and their families throughout the year.